I discovered yesterday that an Indian CKD registry exists, thanks to Dr. John Agar, who posted about his presentations at the Asia Pacific Congress of Nephrology at Seoul recently.
So, there is an Indian CKD registry after all. It has a website, poorly designed but with some very useful statistics at http://www.ckdri.org.
Some interesting statistics from the registry:
- Mean age of the patient with CKD is about 50 years
- 70.2% of the CDK population is male
- Diabetic Nephropathy is the leading cause of CKD
- 18.3% of the CKD population is on hemodialysis
- 2.74% is on Peritoneal Dialysis
The registry currently involves 154 centers around the country, there are many more. The next steps are to involve more centers to get a more accurate picture. The registry is going to be expanded and is going to be used for advocacy. This is really heartening to know.
The first step to any change in the way CKD is handled in India is a registry. Nothing can be done without having accurate numbers to back up your claims. We knew for long that diabetes was a strong indicator for kidney disease. Now we have numbers to back up that "knowledge".
I really hope the registry achieves its desired objectives.