Friday, June 11, 2010

An Indian CKD registry now exists

I discovered yesterday that an Indian CKD registry exists, thanks to Dr. John Agar, who posted about his presentations at the Asia Pacific Congress of Nephrology at Seoul recently.

So, there is an Indian CKD registry after all. It has a website, poorly designed but with some very useful statistics at http://www.ckdri.org.

Some interesting statistics from the registry:

- Mean age of the patient with CKD is about 50 years
- 70.2% of the CDK population is male
- Diabetic Nephropathy is the leading cause of CKD
- 18.3% of the CKD population is on hemodialysis
- 2.74% is on Peritoneal Dialysis

The registry currently involves 154 centers around the country, there are many more. The next steps are to involve more centers to get a more accurate picture. The registry is going to be expanded and is going to be used for advocacy. This is really heartening to know.

The first step to any change in the way CKD is handled in India is a registry. Nothing can be done without having accurate numbers to back up your claims. We knew for long that diabetes was a strong indicator for kidney disease. Now we have numbers to back up that "knowledge".

I really hope the registry achieves its desired objectives.

4 comments:

Anonymous said...

Hey..! I just came across your blog today when researching a bit on dialysis, for my aunt who has very recently started long term dialysis for diabetic nephropathy. I was interested in finding out a bit more about your experience with daily nocturnal home hemodialysis (DNHD) and wanted to ask which machine you are currently using. Also, do you know of any training centers in Kolkata, and any nephrologist you or your doc can suggest in Kolkata?

Really, really appreciate any help you can provide and its a great blog you've got here, and thanks for it!

Rgds,
PD

Kamal D Shah said...

Hi PD,

I am using the Fresenius 4008 S. By training centers, do you mean for nocturnal? I doubt if there are any such training centers for nocturnal. Unfortunately, home dialysis and even more so nocturnal dialysis has not become popular in India. Most people on home hemo have a tech that does it for them and they do it twice or thrice a week.

I have not come across anyone on nocturnal yet. If you do, let me know. It would be great to get in touch with them.

I have no idea about nephrologists in Kolkata. But I'm sure the primary physician should be able to recommend someone good. Sorry to not be able to help here!

Feel free to email me if you have any questions. All the best!

Kamal

Anonymous said...

Thanks for your reply. I'm surprised about your response about the nocturnal home hemodialysis not being popular in india yet, it's such a shame, since most studies show how much more beneficial this treatment schedule is than the standard thrice weekly 3-4 hour sessions at the hosp!

If you would not mind, I'd like to inquire about the price of buying the Fresenius machine for home hemo dialysis. I've done a little digging around online but I could not even find an estimate of the cost of the machine for the Indian market!

Please do help!

Thanks and regards,
PD

Kamal D Shah said...

Hi PD,

Please send me an email. It will be easier to discuss this that way. My email is kamal@kamaldshah.com

Kamal