Wednesday, May 18, 2016

Completed ten years of home hemodialysis!



A few days back, I completed ten years of home hemodialysis. When I look back at that time, I think I was quite brave to take this modality up. There were barely a handful of people in India doing home hemo and no one that I had come across was doing daily nocturnal home hemo - the modality I was planning to adopt. If the circumstances of that time faced me today, I doubt if I would ever take that up.

Today, after ten years of taking the plunge, I can safely say that I am alive today only because of this modality. Yes, there are many on regular, thrice a week hospital-based dialysis who have been on dialysis for longer than I have been. However, one major difference between them and me is the level of 'compliance'. Now, that's not my favourite word in the dictionary but it is true - I am an extremely non-compliant patient when it comes to diet and fluid.

My weight gain between sessions (with daily dialysis) is at the very least 2.5 litres and at times goes to 4 litres. Even with daily dialysis, I have developed heart issues. I am pretty certain my heart would not have tolerated those large weight gains on regular thrice-weekly dialysis. Or I would have had to restrict myself so much that I would not have found life worth living any more.

I absolutely need to thank some people for enabling me to opt for this modality.

First and foremost, my nephrologist at the time, Dr. Girish Narayen. He was the one who told me about this modality. Only after he mentioned this, did I get onto the internet looking for more information and start the whole process. If he would not have told me about it and sowed the seed, I would never have even begun.

What can I say about Jayaram Reddy? I knew Jayaram from KIMS Hospital where I was undergoing hemodialysis at that time. Jayaram, to me was nothing short of superman! He was an expert cannulator. He could handle emergencies that happened in the dialysis centre expertly. He also was tremendously confident in his own abilities. I remember asking him if he would come home and do my dialysis. He readily agreed. Again, if it wasn't for Jayaram, I would never have dared to actually get started.

My parents played a huge role in supporting me. Without their encouragement and continuous help, this would not have happened. Right from coming with me to Mumbai and visiting people who were doing hemodialysis at home to arranging the funds to buy the machine and RO plant at home to actually supervising the entire setup, they have been there at every stage of this decade.

A lot of what I have done in my life today is thanks to daily nocturnal home hemodialysis. And I intend to go on for much longer!

9 comments:

Virendra Kumar said...

Thanks for encouraging me. My son Mayank Singhal is on home dialysis for last one
year and he has no problem with it and he is feeling very convenient with it. Let us see how long he can continue with this. But one thing is there, he not gaining weight. When we have started Home dialysis his weight was 32 and now is stable at 37 for last three months.

Kamal Shah said...

Is he on Home Hemodialysis or Peritoneal Dialysis?

Rajdeep Choudhary said...

Congratulations Kamal!
You're among the few pioneering warriors one would come across.
#inspiring

sree teja said...

Hi I am teja and I am undergoing hemo dialysis from last 3.5 years and 1st 2years I used to gain 3kgs daily my weight was so bad and they used to take of my excise weight what ever the weight I use to gain it use to effect on my body and I used to become so week and thin later first I have too thank my nephrologist Dr jyostna madam from star hospital she used guide me in all medical terms what ever I do., I do max enjoyment in my life even when I was in hemo dialysis it's all because I am under a care of doctors., never give up we can do every thing even if u r in dialysis only thing this we can't stay where ever u want like out stations where u want to, main thing better stick on to one dialysis center that makes u more helpful for ur feather, doing thrice weekly help u more clearance to ur blood and make u more healthy

Madhooo said...

Congrats Mr. Kamal shah.. Keep going.. All the best

Shravan Vasishth said...

Kamal, you are an inspiration for me. I'm in my fifth year of hemo, doing night dialysis three times a week. I have learnt a lot from your blog posts. All the best.

manojag said...

Kamal,
Youn are a true Samurai!! Wishing you many many happy and joyful years ahead.
Manoj

Kamal Shah said...

Thanks so much to all of you for your wishes!

B said...

Proud of you Kamal !