tag:blogger.com,1999:blog-4155770613355202151.post5198614613907571128..comments2024-03-16T12:33:24.212+05:30Comments on Kamal Shah's Blog: Give me the NxStage System One. I will not even ask for Eculizumab.Kamal D Shahhttp://www.blogger.com/profile/10671037449347982821noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-4155770613355202151.post-69455242346228452892016-06-21T22:03:10.647+05:302016-06-21T22:03:10.647+05:30I strongly disagree with "unhindered". ...I strongly disagree with "unhindered". My Hubby has been on dialysis for over 4 years. He started with peritoneal and after life threatening complications at the 1 year mark, did in center and then we trained for home hemo-dialysis on a nxstage machine. Traveling, even if the nxstage machine is hard! The machine weights a lot, portable is a very relative term. It takes both of us to carry it and load and unload it. Then there are supplies. Let's say we want to travel for 7 days. Hubby does dialysis 6 days a week using 40 ltrs of dialysate a day. So he would need 4 boxes of premixed dialysis per day to travel, so that is 24 boxes, plus 4 to 8 boxes for emergency back up. So now we have the machine and about 30 boxes. We need a shares box for the needles, and all the supplies for the machine, including saline and cartridges. So we are talking another 5 to 6 box of supplies for a 7 day trip. If we travel by plane we have to figure out how to get the machine and 35 or so boxes to the airport and on the plane. Don't forget he will still need to do a treatment that day and with set up and clean up that is 6 hours a day. Do you see how quickly this gets complicated? Now if we travel by car we need to rent something to attach to transport everything or plan ahead and have as much as possible shipped to the location. It can be done, people do travel with the nxstage machine, but I think it is totally unfair to say it's unhindered. Hubby hasn't seen some of his family in years because it is too hard to travel with his machine. Lunahttps://www.blogger.com/profile/07903963815757963397noreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-12034691551011077382015-11-23T17:45:23.407+05:302015-11-23T17:45:23.407+05:30I have not yet got the machine.I have not yet got the machine.Kamal D Shahhttps://www.blogger.com/profile/10671037449347982821noreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-54175932459273706182015-11-21T19:23:46.970+05:302015-11-21T19:23:46.970+05:30i think this machine would have came to india and ...i think this machine would have came to india and u will be using it and enjoying u r time. i need this nx stage machine in pakistan for my brother , could u give me any link ? how could i manage supplied for regular dialysis ? cost ? incase of fault ? refurbish able ?Anonymoushttps://www.blogger.com/profile/17886300444528920180noreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-30048910321724932172014-10-18T15:01:05.958+05:302014-10-18T15:01:05.958+05:30http://www.yourhoustonnews.com/humble/news/portabl...http://www.yourhoustonnews.com/humble/news/portable-dialysis-system-improves-quality-of-life-for-humble-man/article_27d88062-849e-5cb8-92bf-dd471933ef54.html<br /><br />Kamal refer to this article.<br /><br />We should try to get this machine to India.Sandeep Kudtarkarnoreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-38567699874288926162014-09-16T16:33:01.076+05:302014-09-16T16:33:01.076+05:30No. No.No. No.Kamal D Shahhttps://www.blogger.com/profile/10671037449347982821noreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-37649422879377213382014-09-16T16:31:59.090+05:302014-09-16T16:31:59.090+05:30Is this with supplies?? If not, do you have any id...Is this with supplies?? If not, do you have any idea of the total annual cost of treating dialysis via a NxStage machine (USD would do)?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-57835414836819371922014-09-16T16:10:38.707+05:302014-09-16T16:10:38.707+05:30There are 2 variants - one costs about Rs. 8 lakhs...There are 2 variants - one costs about Rs. 8 lakhs and the other Rs. 11 lakhs (converted to INR). Of course, these are not yet available in India.Kamal D Shahhttps://www.blogger.com/profile/10671037449347982821noreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-78189141024070499832014-09-16T16:04:13.588+05:302014-09-16T16:04:13.588+05:30Hi Kamal, What is the cost of NxStage's System...Hi Kamal, What is the cost of NxStage's System One machine??Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-81567602892278500062013-03-09T05:44:52.382+05:302013-03-09T05:44:52.382+05:30Hello Anonymous, no this machine is not yet availa...Hello Anonymous, no this machine is not yet available in India. I do diakysis at home using a much larger, non-portable Fresenius machine.<br /><br />I have a technician who helps with my dialysis.Kamal D Shahhttps://www.blogger.com/profile/10671037449347982821noreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-92060596211069691882013-03-08T12:13:02.284+05:302013-03-08T12:13:02.284+05:30Hi Kamal,
Is this machine available in India now i...Hi Kamal,<br />Is this machine available in India now in 2013? If yes , what is the cost ? If you are doing dialysis at home using this machine, how does one monitor important parameters like BP, Pulse etc? Does this require a nurse to be present while doing dialysis?<br /><br />Please let me know.Unknownhttps://www.blogger.com/profile/10715794099445280927noreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-23897478844485256852012-08-25T03:03:46.435+05:302012-08-25T03:03:46.435+05:30i agree with you mr kamal but do not lose hope. if...i agree with you mr kamal but do not lose hope. if u can import and are ready to take initiative. repair and maintenance i can help in whatever capacity i can.<br /><br />wishes and regards,<br />manishmilligramhttps://www.blogger.com/profile/04632446888611212258noreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-14919942134379827322012-05-29T10:42:31.126+05:302012-05-29T10:42:31.126+05:30More than the cost of the machine, it is the cost ...More than the cost of the machine, it is the cost of the consumables and the problem of repair and maintenance.Kamal D Shahhttps://www.blogger.com/profile/10671037449347982821noreply@blogger.comtag:blogger.com,1999:blog-4155770613355202151.post-18759858258752106152012-05-29T10:36:23.725+05:302012-05-29T10:36:23.725+05:30Kamal! Can't you import it? Is the cost that i...Kamal! Can't you import it? Is the cost that is stopping you or something else?<br /><br />And btw, i googled to see how NXStage looks(in size for portability) with a query string "nxstage system one india" and the top 3 results were pointed to you blog site. Thats great.Thrinath Chakravarthy Jalamaduguhttps://www.blogger.com/profile/05395073354428751666noreply@blogger.com