My bone pain is getting worse. It is a big problem. I find it difficult to walk down a flight of steps. There is too much pain in my feet. I have to walk down like an old man - step by step - planting both my feet on each step. I feel crappy.
I did all the relevant blood tests. Its been a month since I started rocaltrol to treat the Vitamin D deficiency thought to be the cause of my bone pain. The PTH is normal now but the bone pain has become worse. The neph feels it could be due to the low phosphorus. It is only 1.1 post dialysis. The normal level is 2.5 to 4.5. I have started adding a phosphate additive to the dialysate to try and reduce the amount of phosphorus being removed from my blood during dialysis.
I was also asked to get some X rays to see the status of my bones. I am going today to get these done.