They are now on their way to Bergamo in Italy for some genetic and biochemical tests which will help me decide whether or not to go in for a transplant and if yes, what route to take.
The entire set of results will be ready in about a year from now. Till then I am hoping I can find out more about Eculizumab, the wonder drug for aHUS. I am hoping it becomes available in India soon. I am going to be spending a heck of a lot on a transplant. Might as well give it my best shot. Use whatever is available. Keep all options handy. Plasmapheresis, Eculizumab and whatever else there might be.